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Saturday, 06 March 2010 14:00
@YogaBear @yogadeals @cancerlost thanks for #FF
Friday, 05 March 2010 14:53
@thatreallybites Ran across your page. check this out TUMORS SUCK! http://www.flickr.com/photos/mightyg/sets/72157621834344022/
Friday, 05 March 2010 14:45
#FF @survivors @LanceArmstr0ng @Kris_Carr @Shanteau @halletecco
Friday, 05 March 2010 14:43
#FF@stupidcancer @JackBouffard @DevraLeeDavis @Courtney__Clark @brockyetso @heidisa @thatdrew @hayeslat @cancerlost @livestrongcb

Newsflash

Hi guys, we are glad to say that the mAssKickers store (http://store.masskickers.com/) is back up!

A quick note: stickers and Tumors Suck t-shirts are not up in the store yet. Sorry for the inconvenience. They will be back in the store shortly.

A Bone Marrow DONOR'S Story
Friday, 19 February 2010 20:13

Medical Disclaimer
This website is designed to provide additional information to patients and their loved ones when faced with intimidating diagnoses. A physician or medical professional should be consulted before making any health related decisions. We serve as a portal for information so that an informed and efficient decision can be concluded by all parties involved.  The creators of this site are not responsible or liable, directly or indirectly, for any form of damages whatsoever resulting from the use (or misuse) of information contained in or implied by the content of this website. The purpose of mAss Kickers is to empower people with knowledge, not to specifically advise people how to address each unique situation.

 

icon_lymphoma_copy

Ethnic minorities on the bone marrow registry are alarmingly low.  Non-blood-relative bone marrow matches for minorities are therefore very difficult to find.  There is a large genetic component based on racial similarities in determining a life saving match!  People of African descent, Asian descent, Pacific Islander descent, Hispanic descent, Middle Eastern descent, Native North/Central/South American descent, or people of racially-mixed decent have a very difficult time finding a match. Joining a registry could save a life.  A simple blood test or cheek swab puts you on the registry.  They will contact you if a match is found.  This is the last chance for many desparate marror recipients despite horrible odds.  Jeremy Fisicaro was one of the rare matches.  He graciously shares his experiences as a minority bone marrow donor.

 

This process began some years ago. When I was in Physical Therapy graduate school 1996-1998, a friend of mine talked me into donating blood. It quickly became a habit. This continues today. One day when I was donating in Sacramento, I was approached by one of the Blood Source staff and asked if I would be interested in getting on the Bone Marrow Donor Registry. The extra vials of blood could be drawn as I finished donating blood. Because I am a minority, Mexican and Italian, the fees would be waived. Sure, why not.

On Mon Dec 29th, 2008 I received a phone call from the National Marrow Donor Program (NMDP) stating I potentially was a bone marrow match for someone and would I be interested in getting tested further to see if I was a match? I quickly returned the call and said yes. I sent a text message to my wife telling her that I might be donating.

It was set up with the one of the local labs so that I could come in and get another few (10?) vials of blood drawn to further see if I was truly a match. Very soon after I was contacted and told that I was a match. Was I willing to proceed further? Yes.

At this point I was sent a packet of info, forms to fill out and info on the donation procedure. One thing that stood out is that working through the NMDP, I would never meet or know the recipient. At best I could send a card or communication to the NMDP and they would forward it to the recipient with all identifiers removed. Once contacted, there are 2 ways to donate: 1) bone marrow donation: aspirating marrow from your pelvis or 2) peripheral blood stem cell donation (PBSC.) My recipient needed bone marrow. Through all this, they tell you that you ARE NOT OBLIGATED during this process and can back out at any time. We began the process so that I could have a physical done by a physician that was not my own and not the physician doing the procedure.

Since I work in a hospital I began to ask about the donation process. The most common comments were…..  “I hear that really hurts!” “Why are you doing this?” “Do you know the person”. I spoke with an Oncologist that works at our hospital and he explained a bit more what happens. I spoke with an experienced Oncology RN and she told me it felt “like you were kicked by a horse.”

Last Updated on Sunday, 21 February 2010 19:29
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The Intercultural Cancer Council
Sunday, 14 February 2010 10:47

standardThe Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.

The Intercultural Cancer Council and Baylor College of Medicine

Baylor College of Medicine assumes fiscal and organizational management for the Intercultural Cancer Council and provides the Council with a national office and Web site.

Where Can I get more information?

Additional information on the Intercultural Cancer Council can be found elsewhere on this site or by contacting us at:

Intercultural Cancer Council
Baylor College of Medicine
Suite #1025
1709 Dryden Road
Houston, TX 77030-3411
Tel: 713.798.4614 
Fax: 713.798.3990 
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

for more information CHECK OUT THEIR WEBSITE http://iccnetwork.org/cancerfacts/

 
Featured: Courtney Clark
Wednesday, 03 February 2010 11:35

Courtney_Clark250Courtney Clark is one active mAss Kicker! She is a great example of how an intimidating cancer diagnosis can’t prevent you from doing what you feel is right.  She has been involved with many organizations such as Planet Cancer, the LiveSTRONG Young Adult Alliance, and the Houston Humane Society.  She is even starting her own nonprofit organization called Austin Involved.  We were very lucky to find time to ask her a few questions.

 

 

icon_melanomamK: Why did you start Austin Involved?  How did you get involved with Planet Cancer?

CC: I started Austin Involved because it was obvious, thanks to my time with Planet Cancer, that young people WANT a cause to be involved in, but sometimes it can be hard to find your calling.  I mean, once the surgeons start cutting you open, you might realize cancer should be your thing.  But if you HAVEN’T had that thrilling and not-entirely-enjoyable experience, you may not know what your passion as a volunteer advocate is, yet.  Austin Involved is a way for young people in my town, Austin, to do a little experimenting and find that out.

I found the Planet Cancer community when I was post-treatment and back to reality, but felt like my friends and family didn’t quite get the lasting impact of my diagnosis.  I needed to hear that I wasn’t a hypochondriacal worrywart, and thankfully I discovered Planet Cancer.  I was already working in the nonprofit world, so when I later found a job posting about doing fundraising and marketing for a nonprofit specializing in young adults with cancer, I thought, “That’s my job!”  I guess they thought so, too.  ;)

 

mK:  It’s funny how things fall into place.  It’s really about finding opportunities and actually pursuing them.  What/ when was your diagnosis?  How did you find out about your diagnosis?

CC: I was diagnosed with malignant melanoma in November of 2005.  I was 26 years old, newly married, in a new job, and living in a new city, far away from my family.  I was actually on hold to be a bone marrow donor at the time, which was the worst irony of my diagnosis.  I was a great match to a stranger off the registry, also a young adult.  I turned on my cell phone one Sunday evening after a weekend getaway to find a 9pm voice mail from my dermatologist.  Even when you aren’t expecting bad news, somehow the words “It’s your doctor.  Call me no matter when you get this message.  Here is my home number, here is my cell number,” make you realize your world is gonna change.

 

mK:  Yeah, that’s kinda like when you were a little kid and you break something.  Your parents call for you, but you KNOW what’s coming.  You know something is going to happen, but you gotta face the music!  What were your symptoms for melanoma?

CC: My only symptom was a large, growing mole on my right upper arm, which I have since dubbed VoldeWART.  In typical young adult fashion, it didn’t look like what the doctors would have expected for cancer, so the only reason they biopsied it was because I insisted.  I’m very lucky I did, because – though it was small on the surface – it was already invasive at stage 1b by the time we caught it.

Last Updated on Wednesday, 03 February 2010 11:47
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